Thursday, May 28, 2015

Yo, Rush, Can I Borrow Some of your Oxy?

I heard through the grapevine that a kind friend wanted to loan me her old laptop so I could continue to write no matter how crappy I was feeling while the Cancer Crazy Road Trip gets underway.  It was such a sweet offer and immediately conjured up visions of The Artist all tucked up under the coverpanes (pink with flower sprigs, a nice rosy checkerboard pattern, maybe a stuffed white woobie-rabbit under an elbow) while the Muse dictates.  Tap, tap, tap, wondrous insights about Life and Death flowing easily from under my fingertips.

It was such a lovely picture and I thanked the friend of a friend who put the idea forward and said I'd certainly keep that option in mind but for now I was still able to shamble out of bed and sit at the compute, a crazy dog lady wandering around the house at the odd hour.

The problem with writing while sick is that sick always takes precedent. When it's a choice between a trip to the toilet or the mot juste, the crapper wins out every time. That's the one iron rule of the human body.  It's wishes will be heard.  The rest is just icing, illusions that we are in control of our fates and masters of our souls. 

Souls? Maybe. But toilet time? Ah, not so much.

And pain.  Can't forget that little demon.  It's the great interrupter -- one constant, stuttering "D'oh!" in the brain.   The slap upside the head that stops the mot juste search in its tracks and substitutes inspired verbiage for getting up and stomping around for a while muttering, "Ow, Ow, Oh, crap, Ow." 

The Docs like to speak of "pain control," nowadays.  Or "Pain management."  That's a new field of study.  A welcome one to be sure, since for too often pain just hasn't been effectively dealt with or understood as the killer it can be. Truly.  Pain hammers the body something awful, adding insult to injury.  Both physical pain and psychic pain.  It's all hard.

But our allowable drug formulary in our weirdly drug-addled country is totally inadequate to the job. (And, to be fair pain medication carries with it its own tricky damages as well.  Tough needle to thread.)

Even "imaginary" pain is an amazing hammer.  When I ended up in the emergency room with the first inkling of what was coming down on me, the CTs indicated a ureter blockage and the Docs thought, "kidney stone's stuck." The pain, they said, was as bad or worse than childbirth pain.  Real knee-buckler stuff.  And out of curiosity (once the morphine IV was making life bearable again) I asked the Doctor about this and was told that the kidney, per se, didn't have any nerves.  Neither did the ureter.  Not like other organs or parts of your body.  So I asked him how in the world a little thing like a ureter tube, a tiny bit of wibbly flesh could generate such hideous pain? 

Well, turns out that the ureter isn't "in pain," but the inside of the human trunk is absolutely bathed in nerve networks, all surrounding all the vital organs. And when the body, in it's "gut wisdom," senses that something life-threatening is amiss inside you, all the nerves start firing off like claxons. So even though the ureter in this case wasn't actually being "harmed," i.e. cut or damaged, the nerves figured that something was up to no good and all hands better get on  deck. Which they did.  Loudly.

Later this morning I'm headed in to see a Nurse Practitioner (the coming thing on the medical front due to the lack of doctors in our brave new world) to see if we can come up with some practical "pain management" that keeps me "comfortable" without turning my brain to mush. 

Which is going to be a trick since I've lived with some degree of  pain for so long I really don't have an idea what "comfortable" means any more.  I suspect on the scales they use -- Zero being no pain and 10 being OMG! -- my zero would be somebody else's 2-3.  Like what an luxury to be able to say "zero."  But you don't get to a certain age without carrying with you all the dinks and donks and blows and falls you've inflicted on your body.  Rattling bag of bones and ouchie tendons grumbling along making the best of it.

Which, let's face it, is about all we can do.  Grumble and open our bag of tricks and see if any of our nostrums help ease the way -- eye of newt, way cool hemi-sync earphones and glorious new age hemi-sync music that's supposed to reset your brainwaves or maybe bring in some short-wave messages from old Earl out there in Hog Hollow West Virginia, yoga, tai chi, meditation, or lovely aroma therapy.  

And if it works without exacting too high a penalty, it's all good. Including getting out of bed at odd hours and scribbling into the quiet morning.  Or snuggling down in the coverpanes with a laptop, though using that that platform might be too tempting to get distracted by a e-book or a movie.  Sitting upright at my computer in the office/den does have the added benefit of resembling "work," so I can claim I'm not frittering away my  time. 

Monday, May 25, 2015

Battle Notes

 Parting Shots: The Death Diaries -- A Comedy in a few acts, maybe.

I have always known
That at last I would
Take this road, but yesterday
I did not know that it would be today
                                  Kenneth Rexwroth

I've been on hiatus for a while, in case you've noticed.  And I wasn't sure if I'd even return to the Can(n)on again.  More and more the utter idiocy unfolding around me has gotten so silly that it just got harder and harder to expend any energy on any of it.  (I know why Jon Stewart's getting out of the Biz.  Once all you've got left to satirize is Louie Gomet, you'd best pack it in.)

 Three months ago I had a life.  Busy, active, from dawn to dusk on the move.  Walk dogs, prepare for the summer's Garden Folly garden, make soup, eat soup.  Same old same old.

Then that life was gone.  Poof!  A trip to the emergency room a confused, unclear diagnosis, bewildering emergency stop-gap proeedures, an ass-backwards muddled diagnostic search filled with growing misery and disppearing strength (including the loss of my two dogs, an awful blow on top of this unholy misery)  finally a report nobody wants to hear ever from any doctor anywhere:  Stage IV pancreatic cancer.

That's when the world goes silent.  And then changes forever.  

And now I'm hip deep in the maelstrom  of Cancer Land -- a bewildering forest of Doctor appointments, research material, unknown unknowns, known unknowns and overwhelming confusion.  I start a chemo program next week.  It's no cure, but  "cure" just doesn't seem to be a word oncologists use very often nowadays.  The new rules seem to be: Live for a while.  Try something else and live for a little more while.  Wash, rinse, repeat.  So the trick now is to learn how to live while dying.  Or vice versa.  And it's bound to be a unique and interesting journey.  One that I'm sure many of my readers have already been on, are on now, or will be about to start as the body's clocks tick over and transform all our lives. 

If that's a shared journey for you, please add your voice any of my future entries. (Dealing with the medical establishment, you just know I'll have some apt comments to carry on about, don't you. Yes, yes.)  And if you are a fellow wayfarer and citizen of Cancer Land,  I'm sure you're  full of news of far wonders as well as practical sources of where to get a good cup of soup that the body can handle. So, do share.  

Meantime, through it all, I have to remember to . . Breathe.


Sunday, May 24, 2015

Your Sunday Photo

Polo.  Florida.  Chukka's rising.  Great way to spend a Sunday.

Sunday, May 17, 2015

Sunday Garden Follly

The little tree was so scrawny, bare root, bare branches.  Looked like something out of a "Charlie Brown Christmas."  But I had faith and mulch and so it made it through the first year, then the second spring and now, a few tiny apples. 

And now that The Mighty Finn McCool's ashes are planted around the little apple tree, I expect it will begin to grow tall, taller, tallest, like the Finn himself. 

In addition, my Garden Folly continues.  In the face of this drought, I concocted a scheme to bury empty plastic 1-gallone pots in the ground, fill them with mulch, and dump sink-water therein withhopes of getting the water down deeper into the soil, thus encouraging any roots to do likewise.  With that idiocy in mind, I fixed up last year's green-bean poles and planted green beans and then stuck in a few acorn squash seeds in the other raised bed.

Then poured water and waited.  And waited. While Mother Nature decided to toy with me, sending down unseasonable cold weather, followed by unseasonable heat and no rain then some rain.  Until, finally . . .

And . . .

Sunday follies, Sunday Miracles.

Sunday, May 10, 2015

Your Sunday Photo

Sammy, The Snail Male